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Data collection method

There are three ways that data can be collected and transferred to the MSBase Registry.

1. The MSBase Data Entry System (DES) is provided at no cost to centres that have joined the MSBase Registry. The application is stored on the local computer system within the centre and data from consented patients are uploaded to the Registry. 

2. The iMed software application is used by many centres. A link from the iMed program to the Registry will be supported for a limited time to facilitate the migration of data to the new system.

3. In some instances, MSBase has worked with organisations to Integrate Internal/Regional Registries with the MSBase Registry. If you believe this might be the right solution for you please contact the membership team

MSBase Data Entry System (DES)

In 2017, we will release our custom Data Entry System (DES). DES is an advanced clinical tool designed to streamline clinician workflow and inform practice. DES captures, stores and organises patient information, creating a local clinical database.

Efficiency is fostered by use of intuitive and comprehensive data entry forms and an intelligent data entry wizard that guides the user to the appropriate forms and fields, while inbuilt validation checks and a standardised medical terminology (MedDra) improve data quality.

Data is additionally organised in to useful graphs and statistics that make all aspects of patient monitoring practicable. The patient overview graph is an invaluable data tracking tool that provides a visual snapshot of patient history, allowing practitioners to monitor individual disease progression, the overall impact of treatment and other key indicators over time. Statistics and nested searches allow data to be filtered and organised so that clinicians can find relationships, reveal anomalies and discover patterns and trends. 

DES has been tailor made to address the multi-jurisdictional restrictions of data privacy by keeping patient records out of the cloud, while still allowing the clinician to interact with the online MSBase Registry. Some of the key features are below.

 

Key Features

 

 

Updated Patient Overview Graph

Quickly and easily see key patient indicators at a glance. Other features include:

  • Interactive: Click on a Visit, MRI, Treatment or any other feature on the graph to view
  • Pinch and zoom, export to PDF or other image format easily
  • Customise and save personalised graphs across all users in the centre
  • Plot up to two numeric time-series variables
  • Plot up to ten percentage change variables
 

Updated Forms and Calculators

Enter patient demographic data and time series/longitudinal data

  • EDSS, MS Course and MusiQOL calculators
  • Custom Wizard to guide users through the data entry process
  • Export patient report and POG to PDF easily
  • Create centre specific fields (Text, Numeric, Text-Area, Date, Checkbox and Dropdown) to capture your own data
  • Export and Search on entered data
 
   

View Statistics

View and cumulatively filter on centre statistics 

  • Each graph can be used to apply a search and locate patients meeting desired criteria
  • Export graphs to PDF and JPG

Compare Demographics with the MSBase Registry

View the patient demographics of your centre and compare to those seen in the MSBase Registry. 

  • Visual indicator comparing your centre/s with the Registry over a wide range of metrics
  • Detailed distribution and central tendency measures for both your centre/s and the MSBase Registry
 
 

Tighter integration with the MSBase Registry

Perform nearly all day-to-day tasks directly from DES without needing to access the MSBase Regsitry. 

  • Real-time synchronisation with the Registry
  • Create, View, Manage and Join Sub-Studies from within DES - No need to visit the Registry!
  • Helpful reminders on new sub-studies, backup schedules and other notifications
  • Enrol patients into the Registry and Sub-Studies easily